- I would wanna… Posted by Petey on Mar 3rd, 2008 in Duchenne Muscular Dystrophy | 1 comment I would wanna be like other kids. I would wanna have more freedom to take care of myself. I would wanna get in the shower by myself. [?] Share...
- What you need to know about Duchenne Muscular Dystrophy. Posted by Jason on Mar 2nd, 2008 in Duchenne Muscular Dystrophy | 0 comments Duchenne Muscular Dystrophy is one of the most severe forms of MD. This is what Petey suffers from. Here are some resources that helped me better understand this disease. Parent Project (DMD and it’s progression) Health Line Both of these sites give great information on what it is and how it progresses. Please take some time to familiarize yourself with this disease. I will warn you that it can...
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Lifestream
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This Saturday (March 1st, 2008) is a pool party at our local aquatic center. Of course I have no way of getting Petey there.
You see Petey loves to swim! It is an amazing feeling for him to be able to “walk” in the shallow end. The water supports his weight and makes it possible for him to “walk”.
I have stepped it up a notch. I am going harder at this than anything I have done before. It keeps me at night. It’s always on my mind.
I would love to have your full support!
(thanks for letting me...
Here are some diffferent resources that will help you to better understand this disease. Basically Muscular Dystrophy is a group of more than 30 genetic diseases that are characterized by progressive weakness and degeneration of the skeletal muscles that control movement.
There are 9 diseases that are ALWAYS classified as MD. One of them is Duchenne. That is what Petey has. I’ll go into more details on this in another post. For now check out the list below.
http://www.mdausa.org/disease/40list.html (a list of different MD diseases with...
I was on the Muscular Dystrophy Association (MDA) www.MDA.org website today. I found out that they have a magazine. The name of the magazine is Quest. They are always looking for good content. So I am going to do some interviews with them.
They are looking for many different topics to talk about. I want to talk about the way we are raising money for a van for Mr. Marshall.
The coolest thing I saw was that there is a USA powerchair soccer team. Mr Marshall and I are going to look into what it would take to be apart of powerchair soccer.
I tell you more when we find...
I was born in Camden. when I was little I grew up in Wildwood. when I was three we moved to ocean city. I made a lot of friends. I have five brothers and three sisters. I have a lot of cousins and I have a niece. tell me about your family and where you grew up. Comment...
Hi this is Petey. I am sitting on the computer at school. Mr. Marshall just showed me this site. I love it! Thanks for stopping by. I hope you enjoy the other posts! Comment and let me nkow you stopped...
Fuel to my fire! We need that van!
Posted by Jason on Feb 29th, 2008 in Featured Articles | 3 comments
This Saturday (March 1st, 2008) is a pool party at our local aquatic center. Of course I have no way of getting Petey there.
You see Petey loves to swim! It is an amazing feeling for him to be able to “walk” in the shallow end. The water supports his weight and makes it possible for him to “walk”.
I have stepped it up a notch. I am going harder at this than anything I have done before. It keeps me at night. It’s always on my mind.
I would love to have your full support!
(thanks for letting me...Great resources to learn about Muscular Dystrophy
Posted by Jason on Feb 29th, 2008 in Muscular Dystrophy | 0 comments
Here are some diffferent resources that will help you to better understand this disease. Basically Muscular Dystrophy is a group of more than 30 genetic diseases that are characterized by progressive weakness and degeneration of the skeletal muscles that control movement.
There are 9 diseases that are ALWAYS classified as MD. One of them is Duchenne. That is what Petey has. I’ll go into more details on this in another post. For now check out the list below.
http://www.mdausa.org/disease/40list.html (a list of different MD diseases with...Quest – the ultimate magazine
Posted by Petey on Feb 28th, 2008 in Muscular Dystrophy | 1 comment
I was on the Muscular Dystrophy Association (MDA) www.MDA.org website today. I found out that they have a magazine. The name of the magazine is Quest. They are always looking for good content. So I am going to do some interviews with them.
They are looking for many different topics to talk about. I want to talk about the way we are raising money for a van for Mr. Marshall.
The coolest thing I saw was that there is a USA powerchair soccer team. Mr Marshall and I are going to look into what it would take to be apart of powerchair soccer.
I tell you more when we find...the beginning of my life
Posted by Petey on Feb 27th, 2008 in My Life | 0 comments
I was born in Camden. when I was little I grew up in Wildwood. when I was three we moved to ocean city. I made a lot of friends. I have five brothers and three sisters. I have a lot of cousins and I have a niece. tell me about your family and where you grew up. Comment...My first blog!
Posted by Petey on Feb 25th, 2008 in My Life | 6 comments
Hi this is Petey. I am sitting on the computer at school. Mr. Marshall just showed me this site. I love it! Thanks for stopping by. I hope you enjoy the other posts! Comment and let me nkow you stopped...About Petey
