- I would wanna… Posted by Petey on Mar 3rd, 2008 in Duchenne Muscular Dystrophy | 1 comment I would wanna be like other kids. I would wanna have more freedom to take care of myself. I would wanna get in the shower by myself. [?] Share...
- What you need to know about Duchenne Muscular Dystrophy. Posted by Jason on Mar 2nd, 2008 in Duchenne Muscular Dystrophy | 0 comments Duchenne Muscular Dystrophy is one of the most severe forms of MD. This is what Petey suffers from. Here are some resources that helped me better understand this disease. Parent Project (DMD and it’s progression) Health Line Both of these sites give great information on what it is and how it progresses. Please take some time to familiarize yourself with this disease. I will warn you that it can...
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Lifestream
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Well, how do I put this? I am extremely happy, but at the same time a bit dismayed. It has been a little over a week since we have launched “Petey’s Power Pack”. Although I have been blown away by the generosity of others… we have not met our goals!
We have had a decent amount of purchases and donations. And we’ve taken a chunk out of our goal… BUT it’s not enough to move forward.
The site is converting pretty well. However, the big problem seems to be traffic. We are hoping that in the next week some big marketers jump on board and FLOOD the site with highly...
I would be happy to get the van because I would be able to go places with my best friend Mr. Marshall wants to take me every where. I want to go to the Crab Trap for my birthday he wants me to have the best birthday every. I would be able to go to his house and go on the computer and he would be able to take me to school. He could be able to take me to camp every year and to the doctors. To any...
On March 29th, my wife and I took Petey to North Jersey, where we went to the Abilities Expo. There were a lot of awesome things there, including accessible vans. This video shows some of our favorites, as well as a few of our other exciting experiences...
http://petey.heartheirstories.com/
That’s right it’s live!
Heather and I have been working our tails off for a months now. It’s finally ready and it’s offically launched.
Wait until you see the video. You are going to be blown away by the site. Time is limited so hurry up and get over...
Today I went to the Abilities Expo with Mr. Marshall and Heather. I am going to play power soccer. I saw accessible wheelchair vans. my favorite thing was the wheelchair that goes up steps and sand, rocks, grass. it was really cool. I saw a wheelchair that can go through...
By Ronda Del Boccio
I can only imagine what my parents went through when they discovered that I was a “special needs child.” They realized that my eyes didn’t seem to track the way they should, so they took me to the doctor, to an ophthalmologist, and even into the hospital for a procedure to figure out what was wrong with my eyes.
My name is Ronda Del Boccio, and I am legally blind. I am not here to talk about me, but I know that if I tell you a little of my story and of the story of my parents, you will get to know me a bit better. I really love talking with parents of children with...
One week left! Will we meet our goal?
Posted by Jason on Apr 12th, 2008 in Product Launch | 9 comments
Well, how do I put this? I am extremely happy, but at the same time a bit dismayed. It has been a little over a week since we have launched “Petey’s Power Pack”. Although I have been blown away by the generosity of others… we have not met our goals!
We have had a decent amount of purchases and donations. And we’ve taken a chunk out of our goal… BUT it’s not enough to move forward.
The site is converting pretty well. However, the big problem seems to be traffic. We are hoping that in the next week some big marketers jump on board and FLOOD the site with highly...I am so glad to get the van.
Posted by Petey on Apr 4th, 2008 in The Van | 2 comments
I would be happy to get the van because I would be able to go places with my best friend Mr. Marshall wants to take me every where. I want to go to the Crab Trap for my birthday he wants me to have the best birthday every. I would be able to go to his house and go on the computer and he would be able to take me to school. He could be able to take me to camp every year and to the doctors. To any...Petey at the Abilities Expo
Posted by Jason on Apr 3rd, 2008 in Videos | 0 comments
On March 29th, my wife and I took Petey to North Jersey, where we went to the Abilities Expo. There were a lot of awesome things there, including accessible vans. This video shows some of our favorites, as well as a few of our other exciting experiences...Petey’s Power Pack is LIVE! Prepare to be stunned!
Posted by Jason on Apr 3rd, 2008 in Featured Articles | 1 comment
http://petey.heartheirstories.com/
That’s right it’s live!
Heather and I have been working our tails off for a months now. It’s finally ready and it’s offically launched.
Wait until you see the video. You are going to be blown away by the site. Time is limited so hurry up and get over...Abilities Expo
Posted by Petey on Mar 29th, 2008 in My Life, The Van | 2 comments
Today I went to the Abilities Expo with Mr. Marshall and Heather. I am going to play power soccer. I saw accessible wheelchair vans. my favorite thing was the wheelchair that goes up steps and sand, rocks, grass. it was really cool. I saw a wheelchair that can go through...My Child Has a Disability: Where Can I Get Help?
Posted by Jason on Mar 20th, 2008 in Muscular Dystrophy | 3 comments
By Ronda Del Boccio
I can only imagine what my parents went through when they discovered that I was a “special needs child.” They realized that my eyes didn’t seem to track the way they should, so they took me to the doctor, to an ophthalmologist, and even into the hospital for a procedure to figure out what was wrong with my eyes.
My name is Ronda Del Boccio, and I am legally blind. I am not here to talk about me, but I know that if I tell you a little of my story and of the story of my parents, you will get to know me a bit better. I really love talking with parents of children with...About Petey
